Monday, February 1, 2016

Hello from NYC

Hello friends. I'm sorry it's been so long between updates -- things have been rather busy with my day job of late, as well as my hobby. That and general good health make for limited updates here.

In part, I didn't update anything on my decision about whether to continue to be seen by the folks at UAMS in Little Rock versus following my beloved Dr. BB to Mount Sinai here in Manhattan because I hadn't yet made a decision. And in a sense, although I'm currently sitting in a waiting room on the upper east side of NYC, I still haven't.

My primary concern with following Dr. Barlogie is that he is no longer the big fish. He is on the staff of his former colleague Dr. SJ, and things will roll along here in large part consistent with the existing culture. This means it's been very hard to schedule (though a change in my insurance carrier didn't help either). I'm trying to do something very simple and in sequence: access my port for blood and other dirty work, get a PET scan (using that port for the tracer), get by knocked out one time, have a bone marrow biopsy and a targeted fine needle aspiration guided by the PET to sample any unresolved lesions in the bone, and talk with the doctor.

The over-under on things that go wrong with that plan is four. I suspect I will leave here without the fine needle aspiration done, for one thing, and that I'll be stuck full of holes anew. Having established those odds...I'm still leaning towards taking the over.

For this reason -- and because after all Dr. BB is in the third act of his career, so to speak -- I'm reticent to pull up all stakes at UAMS. I want to keep a foot in both ponds, at least until I see how things tick up here in NYC. So I'm leaning towards getting my testing done here and then doing a phone consult with the folks at UAMS, versus having two sets of tests done.

We shall see if that is permitted.

Meanwhile, I'm waiting to be called but I already miss certain "homey" touches from Arkansas. I was counting on a tissue and a cup of coffee and they have neither, and the familiar faces from the infusion center at Little Rock are of course missing.

On the other hand, I have more food choices this week than was the case in Little Rock. And I have a fair amount of work I can get done in this great city. So onward we go, with a foot in both ponds for the time being.

Real-time update: a big hug from the irrepressible BJ has just made everything seem great here. :)

16 comments:

  1. Nick, I'm very interested in your experience in NYC. I go to LR in three weeks and look forward to visiting all (minus BB and BJ), You were pretty much right on about my response to TT4. Don't stay away for so long.
    Craig

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    Replies
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  2. Nick, I am also very interested in how it goes there. I don't know for sure what I am going to do either.

    I don't know if you have been to Little Rock since BB left, but we went in October and felt that our experience at UAMS had also changed. We waited in a not very crowded waiting area to see the new doc. I will say that we had coffee and tissues though.

    I think that my new doc is probably very competent, but I did not leave the visit with the same uplifted feeling with which we left after talking with BB. The visit seemed more clinical and less personal.

    I have some of the same concerns that you stated about moving to NYC to see BB. Another concern is that I read that Mt Sinai would not offer conscious sedation for my BMB. I had some that were very manageable, and then had a HORRIBLE one. I have requested and received conscious sedation ever since. Not sure how to find out about this, if you have any idea I would appreciate the input.

    Also interested in how you went about setting up your appt. in NYC.

    Best of luck - Ed

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  3. I wish I knew you were in NYC. I had an appt with Dr. SJ yesterday. We could have met for a cup of coffee. I know were they keep it at Mt. Sinai

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    ReplyDelete
  8. ALL THANKS TO DR WILLIAMS
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    ReplyDelete
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    ReplyDelete
  10. ALL THANKS TO DR WILLIAMS
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    ReplyDelete
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    ReplyDelete
  13. I want to write a little testimony about the good work of doctor ehiaguna who cured me from Hsv 1 and 2 for just 2 week with his herbal medicine, I never believe I can be normal again and have a good life like others I always regretted the day I got diagnose with the virus, I was lost of hope when my doctor told me there is no cure for it but I keep thinking and thinking about my future, if I can have kids of my own well I am so grateful for my helper who get me cured with his herbal medicine, I go online in search of anything that can help me because I can’t deal with it forever so I found this doc ehiaguna email on a blog of someone who was cured by him I quickly contact him for help and explain all my pain to him, he told me not to worry about it there is cure for real, I never believe until he send me the herbal medicine when I order for it and I have it within 4 days that is how I took the medicine for 2 week and the following week I go for test just to confirm I was 100% cured from this sickness what a miracle in my life I am so happy right now, you can also get in contact with him if you have such sickness through drehiaguna@gmail.com and also WhatsApp him +2348073908953... And He also have herbs medicine to cured the following diseases; eczema,urethra wart,chronic problems.Herpes, Cancer, Als,Hepatitis, Diabetes, HPV,Infections,ulcer  ETC

    ReplyDelete
  14. Herpes is a sexually transmitted virus that primarily infects the mouth and the genitals. It is transmitted by bodily fluids – penetration isn’t required for transmission, oral-oral or oral-genital contact will suffice.I WAS ONCE HERPES SIMPLEX VIRUS patient, I have HSV-I genitally and I'm one of the rare cases where I was infected by sexual contact. The person who infected me was unaware that he had it, and he tested negative on a blood test (he probably got it from his mother at birth and never had an outbreak in his life).I'm sure I have HSV-I (they did a culture of the fluid from the sores i had during my initial outbreak). So it is possible to contract HSV-I by asymptomatic asexual contact, so please people talk about this and prevent anyone else from getting it, I'm kind of going through something. Four years ago my love and I both had an OB and when I got the blood work done it came back negative. We were happy in the relationship so I learned to accept it and never really bothered to get tested again. Now, that we broke up I decided to get tested again. I came back negative for both HSV-1 and HSV-2 (got the news!) and have not had an OB since the initial one four years ago. My X on the other hand has had a few small outbreaks and never came back positive for HSV-1.Only the help of Dr Afrid where able to help me out with is Root and Herbs, if you are having any type of this disease or infection like HIV,CANCER OR ANY disease kindly email doctor Afrid for cure:( drafridherbalhome@gmail.com ) or Whatsapp him on +2349057260738.

    ReplyDelete
  15. Herpes is a sexually transmitted virus that primarily infects the mouth and the genitals. It is transmitted by bodily fluids – penetration isn’t required for transmission, oral-oral or oral-genital contact will suffice.I WAS ONCE HERPES SIMPLEX VIRUS patient, I have HSV-I genitally and I'm one of the rare cases where I was infected by sexual contact. The person who infected me was unaware that he had it, and he tested negative on a blood test (he probably got it from his mother at birth and never had an outbreak in his life).I'm sure I have HSV-I (they did a culture of the fluid from the sores i had during my initial outbreak). So it is possible to contract HSV-I by asymptomatic asexual contact, so please people talk about this and prevent anyone else from getting it, I'm kind of going through something. Four years ago my love and I both had an OB and when I got the blood work done it came back negative. We were happy in the relationship so I learned to accept it and never really bothered to get tested again. Now, that we broke up I decided to get tested again. I came back negative for both HSV-1 and HSV-2 (got the news!) and have not had an OB since the initial one four years ago. My X on the other hand has had a few small outbreaks and never came back positive for HSV-1.Only the help of Dr Afrid where able to help me out with is Root and Herbs, if you are having any type of this disease or infection like HIV,CANCER OR ANY disease kindly email doctor Afrid for cure:( drafridherbalhome@gmail.com ) or Whatsapp him on +2349057260738.

    ReplyDelete